Friday, October 16, 2015

CRUISING RIPPLE EFFECTS

Since the last post...I did get to see the liver specialist out of pocket and had my questions answered and then some like the insurance dragging their feet saying NO to everything and why that one lesion last year has multiplied into many lessions including my liver now (1.5 yrs. later :/). We just need to find the infection and well...I'm still on the water thing. The dogs and I are sick at the same time and Jim won't be because he is in Atlanta all the time. And wouldn't you know my liver would be swollen on that visit 2 days after a stressful scenario with AT&T again about my internet speeds on the computers (even the new one) slowing down to 1.0 to 3.0 (on a good day)? But I practiced breathing technics and clasped my cross while saying prayers while I waited to relax and not come off as some excited rube who is getting to see a real doctor and not have to look on WEB MD for my answers while fighting AT&T for internet speed lol :D No wonder all of the other doctors laugh at this mess and even the one I never got to see in the year and a half (nurse anyway) say I have the WORST insurance of ALL!! United Health Care. Don't do it. It's a trick :/

So I just got tired of the nightmares and crying in the night disturbing Jim's sleep when he is home, waking him up, worrying him, and then he'll console me so I jumped up and shopped for him the Harley he wanted; Heritage Softail. He had even slipped and fell in the shower in Atlanta the week I gave him more bad news and landed in the ER so I just wanted to put a pep in his step and make him
happy by getting out from the black cloud UHC allows to linger over our heads and get happy and not worry about me for a moment. 2 days later he takes a sick personal day (what I call a 'get well' and 'live' day!) and headed out towards Hattiesburg Cycles which is a HUGE place with EXCELLENT inventory and an Indian dealership. When we walked in the door, a little Indian Scout with matt finish in Paros colors grabbed my eye so I just stood there a moment. Jim liked her too! He liked her so much, he passed on the Harley and bought her even though she is smaller than my sportster (which I couldn't get my feet flat on the ground but this scout I can!!). Paros went for the ride too and got to go in loving the attention! He is a very sociable boy and sooo sweet but the day got a little rough on us when we learned my new insurance I had gotten from the bank canceled on me, we had no time to add the tow package to my SUV to trailer it home because of that mess (both of us nervous about me having to drive), and Jim froze and ached from riding it home 3 hours into the night :(

But regardless of the obstacles, I laughed most of the day at him when he said he'd have to change all of his Harley stuff! Then when he got home saying "That's out of my system now" and in the morning when he said "Happy anniversary...I just bought you a bike!" Lol...we are back at the
drawing board looking at used Harleys but I know my mission was accomplished by the way he and Paros lit up like fireflies during the course of the day :) And somehow I knew when I quit worrying about the unscrupulous ethics and policies, mistreatment, and devious con methods of big businesses like ATT and UHC by putting it all in God's hands...things would come about ok regardless of our plans. They became His plan for us so the ripple effect took a different path from the one we were on and we came home with a fresh perspective :) Also found out his boss has the same exact bike so how bad can that be? It's a sharp little scoot!

And even though the insurance thinks I'm alright but when I got on the bike I could tell my balance was off...maybe they are right and I should take 'alright' for a ride lol! :D Although the neurologist was going to run another scan to see if the growth in my neck was growing and pressing more on my spine...and check the ruptured disc that sometimes presses on my nerves when I try to get active
(which is the least of my problems), the insurance thinks I should just do some physical therapy (which I am happy for on the disc part at least) but we'll see. I told my general practitioner yesterday if it's not in my head...I'll be in with more shattered bones :( If not...I'll be getting some of that fresh crop dusted country air after my glass of coliform water ...clearing my head and laughing in the wind I call "God's Breath" ;)

As far as these health insurance companies tying the docs hands behind their backs and not letting them do their jobs correctly, forcing us to just see nurses who only have a 4 yr degree (which I'd rather go into the vet with the dogs myself), and just go in for one thing at a time even though you may fall like me and shatter your arm along with hurt your lower back at the same time (which will FINALLY be looked at next week and has gotten worse with the trip over the wires when ATT connect tech had me bridge router to router one night)...I don't see where they, nor I, are saving any money so I will just keep making appts until it is corrected. The doc just laughed when I said "Inept" and how a friend in Canada was diagnosed with a lung tumor and already underwent chemo and radiation within 3 months time! We know she doesn't carry UHC lol! :D So nothing pathetic here but the companies :P I'm still trying to get in touch with FDA and discuss drug and treatment quality in Mexico...for real! I only blame that lesion turning into lesions this past year and a half on UHC even though they try to blame it on the region and docs (shame on them! family and co workers in other states that have them are saying the same thing about them! And they really should check who they 'network' with or hire into their network :P ).

Other than that...when I went to get my BP meds refilled at Walmart ...and every month they I have no more...Jim says he will send them my funeral bill if anything happens to me. We later get "Oh...here it is" EVERY month so stupid stops here too. Next month I will have them at the pharmacy here in town and we are TOTALLY boycotting Walmart :P After my BP got high yesterday, liver started swelling, I became disoriented in the middle of the parking lot and had to figure out what I was doing and where was I. I just drove over next door to the hospital and downloaded on a nice lady there, we laughed, down breathing techniques, called Jim who was under 2 hours away to meet me at a restaurant and drive me on in home :) (and I gess I'll need a therapist in their network because boy am I getting depressed with my life on hold :( ). I probably need to just stay away from anything or anyone that's stupid but I feel every time I turn around and take 2 steps...I meet up with it again :/
 
Yep. Till then it's all a ripple effect. But we're through riding the inept waves cast by big business. We are skipping our own stones and I can't wait to see what's on the other side of the pond! (and I'm ready to shave my head of hair to show the gashes from the falls :/ Lol...my vet says along with the gen. P they should also do a lyme test from the 5 ticks in my head Mana brought me from the woods :l).

Thursday, September 24, 2015

SOARING HIGH

Oh my gosh, oh my gosh...I just had to post this quick one not only because Pope Francis is here and I've been watching him with love and admiration...praying congress will ACT and not FORGET what he is requesting...but my little brother's prayers and other prayer group this week brought an appointment in a couple of weeks to see my out of pocket and out of hellish insurance network doctor I saw last year! To read my results (they already got them from other doctor I've never seen nor had the nurse tell me cat scans etc.) and to discuss options! Wow! What a novel idea lol! A doctor with options! Thanks to all for the prayers...even though this is probably not reversible...at least maybe we can stop it!

And even though this video lives on this page.. I am posting it here of him blessing the bikes in Rome from Harley Davidson's 110th anniversary when we went a couple of years ago. I still get excited when I see him! Is there anyone better than Christ, Pope Francis, The Delai Lama, or MLK? Well...I mean under our father in heaven ;)

Don't Nope The Pope :P
 

Sunday, September 20, 2015

FOG LIGHTS

Had to shake some hard blues from last post by hitting the phone to just find a doctor outside of my horrid UHC insurance. Actually hit down past the blues into a depressed stipor that lasted about a week. My little brother and some of Jim's co workers all agree how lame they are and I don't know what exactly an attorney meant by state something but it seems it isn't the state so much since others are in various states and stories are not far off from mine (although they are seeing doctors :( ). I got a little hopeful thinking it was reviersible but don't think mine is so I am going back to my general practitioner to let him in on where I am at with this (he will be in disbelief), called another doctor I had visited out of my pocket and finally got his new nurse (wonder if that is why he has a new nurse lol?), bought ink and about $50 in stamps (plan to write a brief description of this mess and send it out EVERYWHERE), and for back up...I've been on the phone trying to reach various departments of the FDA for advice and to inform of my intentions to not wait another 2 yrs and just go ahead and seek treatment on my own (I'm having to look up questions, diets, flushes, etc.)

Finding no-no's for Jim
I've noticed a big difference by following a liver flush online but also found out my Blood Pressure meds cause serious liver failure as a side effect, and to reiterate...a bit of contaminated water but my regular diet is up to par. I've always followed the high carb, low protein diet my internist gave me 30 years ago when I came down with shell fish poisoning at a pre-med party for the DOA (Delta Omega Alpha....but as we'd joke...Dead On Arrival :/).I did increase my fruit smoothies, always use olive oil, adding lemon to my water even though I have lemons for my unsweet tea all the time (even have lemon trees I go through soooo many lemons lol...and favorite cake is lemon poppy seed with cream cheese icing). I live in the state that produces sweet potatoes so we are always stocked with that, salads, always been vegetarian until 40 but eat VERY LITTLE meat now anyhow..and lean cuts at that, organic brown basmati rice, organic brown rice (except white with chinese or social pot luck events and dog food...I switch back and forth from brown and white as back up). So hell...even the dogs eat rice or noodles with broccoli or carrots, apples, sweet potatoes, and rarely chicken! I'm still using Castor and Pollux Organix mixed with Blue Wilderness Salmon as dry feed.

Other than trying to break the horrors of UHC and treat myself, we are also thinking about dropping it down a bit so I can fly out of country to start a regime and have access to drugs that may help...as soon as I research them online or get a doctor outside of UHC crap. I really do think I have a better shot at healing via a shaman in the amazon rather than their doctors so I wrote the name of the institute that does this in Peru from HBO's "Sacred Science". I think if I am a single indigent female...I'd probably get better free clinic govt care with my disability because then they can't tell me we make too much money :P (Bite me). 

ESO Guild Play
Got my eldest daughter a formal gown for Christmas dinner cruise. Normally we hold off on the Tux and gown stuff unless it is the European Voyages but I think this occasion will be good for a family photo and she was really happy. It' kind of broke my heart to see her semi formal dresses for high school dances and stuff sold at her garage sale this weekend :( I remember the year they told her that she didn't need rehearsal for the talent show because she was that good but she had to change words from Grace Slick's song "White Rabbit" from 'Feed Your Head' to 'Heed Your Head'. :l Sometimes I just wish I listened to something other than rock and roll growing up lol :D Trying to get her to come down and spend the day to pass my leather craft off to her...the mask form anyway. She was raised in New Orleans and attended a private school by the Quarter growing up so she has the sense of style and is artistic...not to mention was very easy to teach guitar and vocals was her own penchant from preschool.

Finding out the On Star, cell phone, gas, etc. is all tax deductible because of this insurance commuting me to death so wonder how the IRS will feel about that next year. If I had known...or out of my brain fog long enough to think, I would have claimed quite a bit on last years but it is all settled now...IRS paid but we are ahead with state taxes. I just figure if I get a head start on the coming taxes...we'd actually get them filed without doing an extension lol :D


Till then, I hope no one is neglected and ill treated by ANYONE...especially their health care professionals. It's not so much our number is up as it is feeling unlovedm mistreated, and alone. I wouldn't wish that on my worst enemy.